2021
2026
Born at the Children’s Hospital of Philadelphia (CHOP), Ivy’s journey began with an eight-month stay in the NICU before he transferred to Levine Children’s Hospital in Charlotte, NC, for another four months. He left Philly, but Philly never left him. He embodied the grit and sass of the city he was born in. Throughout a lifetime of medical complexities, surgeries, and chronic illness, Ivy redefined toughness. His strength was humble, steadfast and not hardened to bitterness.
Ivy was dependent on community. In turn, he made his “disability” a gift to others—a gift of bringing people together and setting a different standard of success. One that seemed burdensome and inaccessible, but was good, true, and beautiful. To make a way for Ivy meant the belonging and flourishing of people of all abilities. Our best was required, and somehow Ivy was able to help us through as we helped him. He possessed a unique ability to ground his family and caregivers, teaching everyone who crossed his path that true strength is found in a gentle spirit.
Ivy was loyal to his favorite things in life. A good board book or crunchy book was always being paged through. His room lit with the colors of his night light. He was a constant presence at church, finding his favorite thing to be communion. As folks would walk past him to partake, he would fill the solemn moment with laughter. His favorite was undoubtedly the rush of going around round abouts in Shelby during a car ride and spending time with his brothers, mom, and dad. He was loved, and he loved us.
He is survived by his parents, Robbie and Brittney Gaines; his brothers, Silas and Abel; his grandparents, Frank and Anita Horn, Bob Gaines, and Linda Gaines; and great-grandparents, Gerald and Juanita Wright, and Carolyn Horn. He is also survived by his aunts and uncles: Victoria and Jay Seagle, Megan and Ryan Whitfield, and Brian and Julie Bullock; as well as his cousins: Waylon and John Warren, Elisha, Micah, Hannah, Cody, Alexa, Kylie, Emily, Gracie, Tillie, and Blake. He was preceded in death by his uncle, Steve Bullock. He is also preceded in death by his great-grandparents: Bob Horn, Robert and Ruby Gaines, and Ron and Olga Smith.
The family will receive friends from 5:00 PM – 7:00 PM on Friday, March 13, 2026, at Cecil M. Burton Funeral Home & Crematory.
A funeral service honoring Ivy’s life will be held at 11:00 AM on Saturday, March 14, 2026, at Hope Community Church in Shelby, with Pastors Skip Allen, Allen Jessee, Chandler Young and Jeremy Peeler offering words of encouragement.
A committal service will immediately follow at Zion Baptist Church, with Pastor Jeff Marburger officiating.
The family wishes to thank the church families of Highlands Fellowship, Hope Community Church, and Zion Baptist Church, the medical teams at CHOP and Levine Children’s Hospital, and the many specialists and therapists who cared for him.
Donations to Ward’s Foundation or UnLocked Inc.
Ward’s Foundation empowers families to manage the emotional and practical challenges that arise after a child is diagnosed with a rare disease.
Ward’s Foundation: 2820 Selwyn Ave Suite 130, Box 824 Charlotte, NC 28209
Unlocked exists to improve the quality of life and maximize the potential of children with disabilities in and around Charlotte, NC. Our mission is to ease the financial burden of families raising children with disabilities by funding adaptive or medical equipment necessary to increase their mobility, gain independence, and promote physical, social, and emotional development.
PO Box 78361, Charlotte, NC 28271
Online condolences can be made at www.cecilmburtonfuneralhome.com.
The family is in the care of Cecil M. Burton Funeral Home & Crematory.
Miranda Pennington
March 14, 2026
I am so sorry to hear this Brittany and Robbie I pray for comfort for the family.
Jared Laino
March 13, 2026
Robbie and Brittney,
My deepest condolences. I know there is nothing I can say to help the pain. Just know you are in my thoughts and are loved by so many. Robbie, you are my brother and I will forever owe more than you know. I love you both. - Jared Laino
Kelli Vollick
March 13, 2026
May God bring peace to the family and friends of this sweet child during this difficult time. Prayers for you all during this difficult time.
Lee and JoLynn Magstadt
March 13, 2026
What a beautiful and purpose-filled life your precious boy lived. God bless his memory and we rejoice knowing he is enjoying the glory of heaven. We now pray for your family that God will provide the grace and strength you need as you trust in Him in the days ahead.
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Rochelle E. Cummings
March 12, 2026
Rest in peace, Sweet Boy. Your presence brought joy to many and your fighting spirit inspired many. You will always be cherished and remembered.
Taylor Wilson
March 11, 2026
We are all thinking and praying for you
Pat and Nancy Smith
March 11, 2026
We are so very sad to hear of your loss. Rest easy as you know he's in God's arms. Praying for all of you. ❤
Sybil Sarratt
March 9, 2026
So sorry to hear of sweet Ivy’s passing. He had the sweetest smile. I will keep you all in my thoughts and prayers for the days ahead. ❤
Amanda Lowery
March 9, 2026
Please know our family holds your family in our thoughts and prayers. I will always remember little Ivy sitting in his stroller and enjoying our Christmas caroling group. So sweet.
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Funeral services provided by:
Cecil M. Burton Funeral Home and Crematory - Shelby106 Cherryville Road, Shelby, NC 28150-4208